Benefit For Kingston 1st Grader With Rare Disorder Could Bring N - KTEN.com - No One Gets You Closer

Benefit For Kingston 1st Grader With Rare Disorder Could Bring New Research

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Warning: Cute Video Alert!  At only 7 years old, a first grader in Kingston named Jaden Clutter has grabbed the hearts of her community.

She's gone through more than most people can imagine. Diagnosed with a rare disorder called Chiari Malformation and Syringomyelia, along with a tethered cord syndrome, she's undergone multiple surgeries. Jaden has even had 6 inches of her spinal column removed to allow more movement.

It's a disorder that is rare and barely understood. That's why Jaden and her family are hoping, with the community's help, they can be involved in new research to help find a cure.

This weekend, family and friends will host an event at Lake Texoma State Park to help raise money, which in turn raises points for Jaden to attend a convention in New Jersey where she could be picked up by a research team.  Included in the walk will be hot dogs, drinks, carnival games, balloons, face painting, t-shirts, an auction. Sponsors are needed.
For more information you can call Lee Ann Clutter at 580-624-0469 or email  slclutter67@hotmail.com


"Syringo-My-What? Walk & Roll For A Cure"
Benefit For 7 Year Old Jaden

Saturday April 26, 2014

Lake Texoma State Park Rally Pavilion, Kingston Oklahoma

Registration 9:30am

Walk 10:30am